But for her to travel over, and as soon as she knew it was a case of, “Yeah OK she’s coming straight away, she’ll talk you through everything.” And then from that point, they’d already started feeding him, but then obviously I took over. Because we certainly didn’t expect that, did we?Īlison: But then it was completely new to us. And she was, she was really good, wasn’t she? She helped a great deal.Īnd it was good to sort of have that contact so quickly. It was only the following day when we got sort of reunited then, didn’t we?Īnd at that point we obviously saw the cleft nurse, didn’t we?Īlison: And she explained everything. It was hard, because I was still on the delivery ward at that point, and he’d gone to special care, so we were completely apart. OK so did you find that the nurse was knowledgeable, did you find when you were on that ward that you had enough information?Īlison: I don’t think at that point they knew that much. A cleft palate is not usually diagnosed before birth but if a baby is born with a cleft palate a CNS will be available to inform and support families at this time. However, once a diagnosis of cleft is made, families are contacted by a Clinical Nurse Specialist (CNS usually within 24 hours of diagnosis) who will explain what a cleft is, the issues associated with it and also how it can be treated (see also ‘Late diagnosis of cleft’). However, it is important to understand that sonographers are not core members of the specialist cleft service and may not know very much about cleft lip and palate. For example, they were unhappy with the ‘matter of fact’ way in which sonographers broke the news to them if a cleft lip was detected during a routine scan (see ‘Diagnosis andbreaking the news’). Some of the families we spoke to believed that the diagnosis and communication of their child’s cleft had been handled badly. The first point of communication is usually with the sonographer (person doing the ultrasound scan) when the diagnosis is made (usually at the 20 week scan). It is common for families to develop close and trusting relationships with the health professionals who look after them and these relationships can start before birth. children born with a cleft are monitored and treated within the cleft service until they reach 21, and further treatment is available throughout adulthood if necessary. The amount of contact with cleft health professionals will depend on the type and severity of the cleft your child has (unilateral or bilateral cleft lip and/or palate), the way the child develops physically and socially and also the way he or she looks and speaks. cleft service: these can include clinical nurse specialists (CNS), paediatricians, cleft surgeons, speech and language therapists, clinical psychologist, orthodontists (specialist dentists who correct irregular teeth), paediatric dentists and audiologists (a specialist who works with those who have poor hearing). Many different health professionals work within the U.K. This contact may start prenatally (before birth) if the diagnosis is made by sonographer (person doing the ultrasound scan) during a scan and will continue throughout the ‘Cleft treatment pathway’ as your child is treated. Having a child born with a cleft lip/and or palate means you will be in contact with a wide range of health professionals in different healthcare settings. Positive experiences of cleft and advice to othersĬleft Lip and Palate Communication with Health Professionals. Social interaction and public awareness of cleft.Perception of self and appearance with cleft.Communication with Health Professionals.Speech, language and hearing with a cleft.Dental and orthodontic treatment for cleft.Feeding a baby born with a cleft lip and/or palate.Cleft and other associated conditions (syndromes).Telling other people about a diagnosis of cleft lip and/or palate.Diagnosis of cleft and impact on pregnancy.Diagnosis of cleft and breaking the news.
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |